Welcome to our journey

My wish is that as you read this blog you can laugh, cry, smile, and enjoy all the stories that I share with you. I am on a journey and I am happy to have you join me.

My name is Rachel, mom to Blaise who is almost 3 (diagnosed with PWS), Maddock 6 months old, and wife to Jona. I have been blessed to be a stay at home mom to my wonderful boys. In September of 2009 my sweet Blaise was diagnosed with PWS. This has forever changed the course of my life. I have spent many years wondering what my purpose in life was, and when it would be revealed to me. I no longer wonder, my purpose is in front of me everyday. I am no part of a club that I didn't choose to join, but wouldn't trade for the world. Along my journey thus far I have met some of the most amazing people. I have come to realize not only has god put special needs individuals on this earth for a reason, but he also put their family members here as well. My two boys teach me so much everyday, I have become the woman I always desired to be. Each day my boys teach me kindness, patience, love, and how to have endless amounts of joy and laughter. Through my journey as their mom I have become a strong and determined woman. My journey has just begun and I am filled with wonder about what the future holds for us.

Tuesday, November 10, 2009

The Wonderful Dr. Miller

Well, we finally made the trip to see the wonderful and amazing Dr. Miller. She was everything I imagined. As I child I remember having doctors who cared, who knew the names of everybody in the family, who returned your phone calls, and made sure you were taken care of. Those days seem far and few between, but those days have ended now that we have Dr. Miller. She gives us hope and she fights the fight with us and our kids. My husband was such a trooper driving 10 hours yesterday to take Blaise to meet her. I know my son is in great hands and together we will find a cure. Today is a good day.

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