Welcome to our journey

My wish is that as you read this blog you can laugh, cry, smile, and enjoy all the stories that I share with you. I am on a journey and I am happy to have you join me.

My name is Rachel, mom to Blaise who is almost 3 (diagnosed with PWS), Maddock 6 months old, and wife to Jona. I have been blessed to be a stay at home mom to my wonderful boys. In September of 2009 my sweet Blaise was diagnosed with PWS. This has forever changed the course of my life. I have spent many years wondering what my purpose in life was, and when it would be revealed to me. I no longer wonder, my purpose is in front of me everyday. I am no part of a club that I didn't choose to join, but wouldn't trade for the world. Along my journey thus far I have met some of the most amazing people. I have come to realize not only has god put special needs individuals on this earth for a reason, but he also put their family members here as well. My two boys teach me so much everyday, I have become the woman I always desired to be. Each day my boys teach me kindness, patience, love, and how to have endless amounts of joy and laughter. Through my journey as their mom I have become a strong and determined woman. My journey has just begun and I am filled with wonder about what the future holds for us.

Tuesday, November 3, 2009

Requirements of a mom

I am still struggling with my new reality. I have spent moments alone wondering if I am capable, if I am strong enough, if I have enough to give? I want to believe that I do, but right now I feel so defeated. My physical state of exhaustation has officially taken a toll on my emotional state. I want so desperately to feel like I am part of a team but right now I feel like I am on an island. I wonder how some people can take and take so much from you. How are they so completely ignorant to the fact that you are depleted and have nothing left to give. I wonder how it is that some of us find it so easy to have empathy for others, while some people no matter the circumstance put themselves first. I wonder if this is a test of my will, or a test of my strength. Whatever it is, I don't know how much more I can take. I need support, I NEED HELP!

1 comment:

  1. You are so darling and inspiring. I love looking at the pictures of Blaise. He is so precious. Although, my mom used to get so mad when people would say that- she thought they should spend a few days at our house before making that assessment. Ha ha! I know you know what I mean! You're doing so great! You will notice a significant difference in him compared to his peers because of all your efforts. I totally promise you that! It just might feel like forever before you can really see what you have done! I wish I were there to help you out! Seriously, I wish I could take him for even just a few hours so you could have a much needed break:)Hang in there. Mikell