Welcome to our journey

My wish is that as you read this blog you can laugh, cry, smile, and enjoy all the stories that I share with you. I am on a journey and I am happy to have you join me.

My name is Rachel, mom to Blaise who is almost 3 (diagnosed with PWS), Maddock 6 months old, and wife to Jona. I have been blessed to be a stay at home mom to my wonderful boys. In September of 2009 my sweet Blaise was diagnosed with PWS. This has forever changed the course of my life. I have spent many years wondering what my purpose in life was, and when it would be revealed to me. I no longer wonder, my purpose is in front of me everyday. I am no part of a club that I didn't choose to join, but wouldn't trade for the world. Along my journey thus far I have met some of the most amazing people. I have come to realize not only has god put special needs individuals on this earth for a reason, but he also put their family members here as well. My two boys teach me so much everyday, I have become the woman I always desired to be. Each day my boys teach me kindness, patience, love, and how to have endless amounts of joy and laughter. Through my journey as their mom I have become a strong and determined woman. My journey has just begun and I am filled with wonder about what the future holds for us.

Tuesday, November 3, 2009

Another day that has begun before the sun

So it begins, yet another day of rising with Blaise at 5am. Oh how I am not enjoying this. I was up all night with the little one and have entered the realm of complete delerium. Today we are off for one more trip up to Children's for Blaise eye exam. I am hoping the doctor says he does not need glasses. I am not sure where I am going to find the energy for the hour + drive up there with both kids, I am sure I will be making a stop at Starbucks. It has been a rough day thus far, Blaise's mood this morning is less than stellar. I am finding it hard some days not to cry when he has the all out temper tantrums. Sometimes I want to run and find a hiding spot, is that mean to say. I think he must be going through a growth spurt, he is cranky and his food seeking is at an all time high. I have learned that as a parent of a child with PWS, YOU MUST BE STRONG. I find nothing harder than telling my angel he can't eat. Oh I pray for strength for today.So great news Blaise has no eye problems,as of yet haha. Although the doctor visit took 3 hours and I had both kids by myself. It was worth it to check one more thing off the list.

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