Welcome to our journey

My wish is that as you read this blog you can laugh, cry, smile, and enjoy all the stories that I share with you. I am on a journey and I am happy to have you join me.

My name is Rachel, mom to Blaise who is almost 3 (diagnosed with PWS), Maddock 6 months old, and wife to Jona. I have been blessed to be a stay at home mom to my wonderful boys. In September of 2009 my sweet Blaise was diagnosed with PWS. This has forever changed the course of my life. I have spent many years wondering what my purpose in life was, and when it would be revealed to me. I no longer wonder, my purpose is in front of me everyday. I am no part of a club that I didn't choose to join, but wouldn't trade for the world. Along my journey thus far I have met some of the most amazing people. I have come to realize not only has god put special needs individuals on this earth for a reason, but he also put their family members here as well. My two boys teach me so much everyday, I have become the woman I always desired to be. Each day my boys teach me kindness, patience, love, and how to have endless amounts of joy and laughter. Through my journey as their mom I have become a strong and determined woman. My journey has just begun and I am filled with wonder about what the future holds for us.

Wednesday, December 9, 2009

An unexpected life

When I was a young girl I used to dream of being a mother. I dreamed of endless laughter, scrapped knees and endless kisses. You never dream of your child having special needs, you never dream of them hurting. There is no handbook on being a mom, and there is definitely not a manual for being the mom of a child with special needs. I will say this, I most certainly don't feel like I am missing out, I don't feel disappointment, and I don't feel angry. I do feel joy, pride, and amazement at the wonder that is my amazing angel. I go to sleep every night with anticipation for tomorrow and what the day will bring. I thrive on all the little, and big accomplishments that my angel makes every day. I am still learning and everyday is still a struggle, but I will not be a victim to my circumstances, and I won't let my angel be a victim either. I do wonder what life would be like without all the 7 hour days at the hospital for specialist visits, what it would be like to not have to plan out therapy appointments, and I long for the day that I don't have to lock my fridge. I have found a strength inside me that I didn't even know existed. I have a drive to set an example for both of my children that anything is possible, that you can achieve anything. I am on this life long journey and I know there is a light at the end of the tunnel.

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