Welcome to our journey

My wish is that as you read this blog you can laugh, cry, smile, and enjoy all the stories that I share with you. I am on a journey and I am happy to have you join me.

My name is Rachel, mom to Blaise who is almost 3 (diagnosed with PWS), Maddock 6 months old, and wife to Jona. I have been blessed to be a stay at home mom to my wonderful boys. In September of 2009 my sweet Blaise was diagnosed with PWS. This has forever changed the course of my life. I have spent many years wondering what my purpose in life was, and when it would be revealed to me. I no longer wonder, my purpose is in front of me everyday. I am no part of a club that I didn't choose to join, but wouldn't trade for the world. Along my journey thus far I have met some of the most amazing people. I have come to realize not only has god put special needs individuals on this earth for a reason, but he also put their family members here as well. My two boys teach me so much everyday, I have become the woman I always desired to be. Each day my boys teach me kindness, patience, love, and how to have endless amounts of joy and laughter. Through my journey as their mom I have become a strong and determined woman. My journey has just begun and I am filled with wonder about what the future holds for us.

Sunday, January 10, 2010

A mother's Message to Her Son

I always knew I would love you
I loved you before the universe brought you to me
They all dreamed of you, with your blonde hair and blue eyes
You came to me

I held you in my arms, I saw only perfection
Perfection is all that remains
You are flawless

As I look into your eyes I feel the butterflies in my stomach whirl
every time I hold you in my arms it feels like falling in love for the first time
You are glorious

Overcome with pride when I stand next to you
Filled with joy watching you climb your mountains
You inspire me to greatness
You are extraordinary

With all of your innocence you have changed me
You move mountains with your laugh
With a touch of your small hands you lift me up
You are powerful

You possess great determination and will
Un knowingly teaching us how to hold on
You urge us to keep going, move forward, and stay strong a little longer
You are invincible

Your greatness is unmatched
I will not label you as anything other than my angel
You do not fit into any box
There is no special category for you
You are unique

I will repeat this message to you everyday
I will stand tall in your presence
Hold you hand tight as we walk together on this journey
You will always know that you are my champion
You are brilliant

As the days go on my voice will ring loud and clear
You will never wonder, doubt, or question or who you are
Your brilliance shines bright
Your are miraculous
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It's been a busy time

Life has been crazy lately. Always so much to do and so much to get done. Things are looking up, looking good, and moving forward. What a great way to start the new year. I am so proud of how far we have come in such a short time. I will write more this week as I have some time to sit down and get back up to speed. Keep praying for a cure.
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